Family Resources
This page is currently being updated)
TOPICS
BRAIN INJURY
CAREPAGES
CHRONIC ILLNESS
DEVELOPMENTAL DISABILITIES
HEALTHY CHILD DEVELOPMENT
HOSPITALS
PALLIATIVE CARE
PARENTING
RESOURCES
SAFETY
SUPPORT SERVICES
Click here for the St. Mary's Family Handbook.
BRAIN INJURY
Traumatic Brain Injury & Coma Recovery Program at St. Mary’s Hospital for Children
Brain Injury Association of America
The Perspective Network
Brain Injury Association of New York State
Association for Neurologically Impaired Brain Injured Children, Inc.
CHRONIC ILLNESS
HIV/AIDS
AIDS Center of Queens County
Pediatric AIDS Foundation
Reachout Health Care America
Cerebral Palsy
Conductive Education Center of Long IslandUnited Cerebral Palsy of New York City
Asthma
The Children’s Asthma Education Centre
American Academy of Allergy, Asthma and Immunology
http://www.aaaai.org
Asthma Camps
Cancer
Camp Adventure
American Cancer Society
Diabetes
Juvenile Diabetes Research Foundation
DEVELOPMENTAL DISABILITIES
Queens Parent Resource Center
Interagency Council of Mental Retardation and Developmental Disabilities
Autism
Asperger’s Disorder
Autism and PDD Network
Association for Metroarea Autistic Children, Inc
Autism Society of America- Queens Chapter
Pervasive Developmental Disorders (PDD)
What is PDD?
Communication Disorders
National Institute on Deafness and Other Communication Disorders
Speech and Language Disorders
HEALTHY CHILD DEVELOPMENT
What is Child Development?
Institute for Child Development at St. Mary’s Hospital for Children
Early Intervention at St. Mary’s Hospital for Children
Early Childhood Direction Center
Developmental Milestones- Information for Parents
Developmental Screenings- Information for Parents
National Child Care Information Center
http://www.nccic.org
National Parent Information Network
http://ericps.ed.uiuc.edu/npin/npinhome.html
American Academy of Pediatrics
http://www.aap.org
Kids Health
http://www.kidshealth.org
HOSPITALS
American Hospital Association
http://www.aha.org
New York - Presbyterian Healthcare System
http://cpmcnet.columbia.edu
PALLIATIVE CARE
What is Palliative Care?
Palliative Care at St. Mary’s Hospital for Children
PARENTING
How parents can help their child cope with a chronic illness?
Caring for a seriously ill child
Communicating with a critically ill child
Respite Care at St. Mary’s Hospital for Children
National Dissemination Center for Children with Disabilities
RESOURCES
American Medical Association
http://www.ama-assn.org
Children's literature
http://www.ucalgary.ca/~dkbrown/index.html
Healthcare Association of NY State
http://www.hanys.org
NYS Dept of Health Consumer Page
http://www.health.state.ny.us/nysdoh/consumer/apcons.htm
Healthfinder – A variety of Health topics and information from the National Health Information Center.
http://www.healthfinder.gov
National Association for Home Care
http://www.nahc.org/home.htm
Independent & Community Living
Brooklyn Center for the Independence of the Disabled, Inc.
Vocational and Educational Services for Individuals with Disabilities
Institute for Community Living
Child Welfare
NYC Administration for Children’s Services
NYS Department of Family Assistance
NYS Department of Child and Family Services
Adoption & Foster Care
Foster Care Information from the NYS Office of Children and Family Services
Association to Benefit Children
Medicaid
Medicaid Information
Child Health Plus: A comprehensive Health Insurance Plan offered by New York State for low-income children under age 19.
Child Health Plus Web Site
Child Health Plus Additional Information
Supplemental Security Income (S.S.I.)
Monthly cash benefits to a low income family having a child with a disability. Not all children with disabilities will qualify. Get as much detailed medical and social/emotional documentation as possible before applying.
Social Security Supplemental Income Web Site
The Marty Lyons Foundation Is a non-profit organization providing “special wishes” for children with life-threatening or terminal illnesses.
Marty Lyons Foundation Web Site
LifeLine is a government program that offers qualified people a discount on their monthly local telephone bill. Each state has its own guidelines to qualify.
LifeLine Support Web Site
Spinal Cord Injury
http://www.fscip.org
SAFETY
Aquatic Safety
http://www.aquaticisf.org
SUPPORT SERVICES
Candlelighters Childhood Cancer Foundation
Center for Family Support
Brave Kids
Bereavement and Loss
Bereavement and Loss Center of New York
Heartbridge Center for Loss and Transition
Compassionate Friends
|
