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Resource Library

Access the resources and information you need to be a strong advocate for a child with a complex medical condition.

Navigating Your Childs Care

A Practical Guide and Resource Directory for Children and Young
Adults with Medical Complexity and Special Healthcare Needs.

Category
Government Agencies - New York City
Preschool special education services are available for children ages 3 to 5 with disabilities or delays in development that affect learning. These services are provided free of charge to eligible children. The parent can contact the Committee on Preschool Special Education (CPSE) to request an evaluation to determine if child is eligible for special education services. The CPSE is responsible for coordinating the special education process for children ages 3 to 5.
Government Agencies - New York City
Preschool special education services are available for children ages 3 to 5 with disabilities or delays in development that affect learning. These services are provided free of charge to eligible children. The parent can contact the Committee on Preschool Special Education (CPSE) to request an evaluation to determine if child is eligible for special education services. The CPSE is responsible for coordinating the special education process for children ages 3 to 5.
Government Agencies - New York City
Preschool special education services are available for children ages 3 to 5 with disabilities or delays in development that affect learning. These services are provided free of charge to eligible children. The parent can contact the Committee on Preschool Special Education (CPSE) to request an evaluation to determine if child is eligible for special education services. The CPSE is responsible for coordinating the special education process for children ages 3 to 5.
Medical/Nursing Organizations
Clinical Trials- database of research studies for new therapies, to test new ways of using known treatments, or to find out more about a disorder. To learn about clinical trials or to find a clinical that your child might be able to participate in visit
Support Groups
A group that meets monthly to provide support to grandparents of patients currently at St. Mary’s. Provides a safe space for participants to share their experience and meet individuals who have a grandchild that is medically complex.currently only available to inpatient grandparents

Can’t find what you are looking for?
Email Danielle Rieber at
drieber@stmaryskids.org
for assistance.