Adiv is a 10-year-old boy with dysautonomia, a medical condition that prevents his autonomic nervous system from working properly. This condition can affect the functioning of several organs, including the heart, bladder, intestines, sweat glands, pupils, and blood vessels. His food takes a very long time to travel through his body because the muscles of his digestive system have become impaired.
At St. Mary’s Hospital for Children, Adiv receives 24/7 care from St. Mary’s dedicated team of pediatric specialists, including physical therapists, recreational therapists, nutritionists, special education teachers, and many others. They ensure that Adiv receives medical support, clinical nutrition support, rehabilitation services, education, fun activities, and everything else they can provide to ensure that this young boy can have the happy, healthy and fulfilling life that he deserves..
When Adiv was admitted to St. Mary’s, he had a tracheostomy and a central line for nutrition purposes. He also had a gastrostomy-jejunostomy tube for his stomach and intestines because his stomach was unable to handle food or formula.
When Adiv was admitted to St. Mary’s, our team set out to help wean him from the tracheostomy so he could breathe on his own. Additionally, a goal was set to have him begin eating by mouth instead of a tube. Through his hard work, Adiv met these goals: he can now fully breathe on his own, and he can eat by mouth! The St. Mary’s team is all so proud of the progress he continues to make.
“Adiv is such a joy to be with. Even though he doesn’t speak, he has his own unique way of communicating with his smile and gentle touch. Being with him can really brighten your day.” –Mariann Mazza, Physical Assistant/Medical Services