For James and his family, St. Mary’s Hospital for Children has been their lifeline. James is a 4-year-old boy who came to St. Mary’s with Apert’s Syndrome, a genetic diagnosis characterized by skeletal abnormalities. His complex medical condition has required advanced pediatric care far more complicated than his family can provide at home. While at St. Mary’s, he receives round-the-clock medical care to improve his ambulation, balance and endurance, and receives physical, occupational, and speech therapies to help him meet all of his early childhood milestones.
James currently relies on a tracheostomy in his throat to help him breathe and recently had his feeding tube removed, meaning he can now can eat and take medication orally. James’s family and all of us at St. Mary’s are pleased with his progress and working towards having his tracheostomy removed so he can go home to his loving family.